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Leaflet
library
Multi-ethnic patient information The
London IDEAS Genetics Knowledge Park aims to improve
access to genetic services for people from
minority ethnic backgrounds. It is funding a project
to develop and deliver patient information in different community
languages.
Patient
information translations will be made available free of charge
to healthcare practitioners on this website as soon as they
are available. GPs and other healthcare professionals are
encouraged to view and download this information.
The project is being carried out as a collaboration between the
NW Thames Regional Genetic (RGC) Centre and the Genetic
Interest Group.
Funding has been provided
to produce leaflets on 25 to 30 topics relevant to clinical
genetics in up to 12 different languages. |
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Leaflets
Topics
Languages
Further information |
Leaflets
As the leaflets we are working on become available, you will be able
to download them (in English and other languages) here.
The two leaflets shown here are examples of the type of leaflet which
will be available in translation in the future and which will be made
freely available to NHS genetics service providers. These leaflets have
been approved by clinical geneticists from the issuing department.
 Autosomal
Dominant Genetic Disorders
An Information Leaflet (116k)
Autosomal
Recessive Genetic Disorders
An Information Leaflet (272k) |
Disclaimer:
These leaflets are intended for issue by clinical genetics departments
to their patients. The information in these leaflets should
not be used for diagnosis. If you think you or your children
may be at risk from a genetic disorder in your family, please
discuss this with your GP first. Your GP might then refer you
to a clinical genetics service. London IDEAS regrets that it
cannot enter into discussion of individual cases over the internet,
or provide a genetic counselling or diagnostic service. |
Topics
The topics include background
information about genetic services, patterns of inheritance and
information on a number of specific genetic conditions. Audio versions
of some leaflet/language combinations will also be produced at a
later date.
A resource consisting
of around 70 patient information leaflets developed by the NW Thames
RGC are being used as a basis for this project. Selected leaflets
are being evaluated for medical accuracy and patient friendliness.
In addition, a translation protocol has been developed to ensure
that the information produced is of the highest quality. Leaflet
translations will be available in electronic format and published
on this website.
Languages
The first 4 languages
to be translated are Punjabi, Gujarati, Turkish and Arabic. Further
languages are being chosen based on the needs of the Greater London
population.
Further information
Although this project has a regional focus it will
serve as a national resource across all regional genetics centres
and
beyond.
For further information contact:
Anna Kessling,
NW Thames Regional Genetic Centre and Pritti Mehta,
Genetic Interest Group by filling in this form for a written response:
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