Introduction
Delivering
genetic counselling services in diverse populations raises many
medical, social and ethical issues.
Hosted
by the London IDEAS Genetics Knowledge Park and Imperial College
London on 26 September 2003, this workshop discussed
several issues, including:
- Can people from a wide range of ethnic and cultural backgrounds
get the right information, in a form they understand, sensitively
delivered and do services currently meet their needs?
- Is it ethical to discuss ethnic background during genetic counselling?
- How can we ensure that clinical genetics services are provided
in a fair and equitable way to all?
- How can recurrence risks be sensitively handled?
- What is currently done well? What can be improved upon?
The workshop
featured numerous eminent commentators on ethnicity issues.
Below you can access the abstracts and presentations given on the
day.
Workshop
Program
Welcome
and Introduction
Professor Anna Kessling, Professor of Medical and Community Genetics,
Imperial College London and Co-Director Knowledge Dissemination
Unit, London IDEAS
 Download
a PDF file (182kb) of Professor Kessling's presentation
Ethnicity
and antenatal screening for sickle cell/thalassaemia
Dr Simon Dyson, Director,
Unit for the Social Study of Thalassaemia and Sickle Cell, De Montfort
University, Leicester
View
Abstract
Practical
Aspects of Providing Genetic Services for ethnic minorities
Dr Carole McKeown, Consultant
Clinical Geneticist, West Midlands Genetics Service, Birmingham
Women's Hospital
View
Abstract, Download
a PDF file (161kb) of Dr McKeown's presentation
Kinship
patterns and their genetic implications
Professor Bernadette Modell,
Emeritus Professor of Community Genetics, University College London,
and retired Wellcome Principal Research Fellow
View Abstract,
Download a PDF file (182kb) of
Professor Modell's presentation
Kinship
knowledge as a tool in genetic service delivery
Dr Aamra Darr, Senior Research
Fellow, Centre for Research in Primary Care, University of Leeds
View Abstract
Clinical
Genetics in Multicultural General Practice: developing proactive
services for consanguineous couples and haemoglobin disorder screening
Dr Nadeem Qureshi, Clinical
lecturer in General Practice, Division of Primary Care, School of
Community Health Sciences, Medical School, University of Nottingham
View Abstract,
Download a PDF file (243kb) of
Dr Qureshi's presentation
Ethnic
origin of genetic and sickle/thalassaemia counsellors within the
UK - does it matter?
Professor Elizabeth Anionwu,
Head of the Mary Seacole Centre for Nursing Practice, Thames Valley
University
View Abstract,
Download a PDF file (360kb) of
Professor Anionwu's presentation
Ethical
implications of race and ethnicity in clinical genetics
Dr Richard Ascroft, Leverhulme
Senior Lecturer in Medical Ethics, Imeprial College London
View Abstract,
Download a PDF file (134kb)
of Dr Ashcroft's presentation |
Professional
training