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Elizabeth
Anionwu CBE is Head of the Mary Seacole Centre for Nursing
Practice at Thames Valley University. Professor Anionwu is a nurse,
health visitor tutor and has a PhD in Health Promotion. Prior to
establishing the Mary Seacole Centre, she was a senior lecturer
in Community Genetic Counselling at the Institute of Child Health
in London. She is a member of the Human Genetics Commission, the
Antenatal Screening Subgroup of the National Screening Committee
of the Department of Health, the NHS Haemoglobinopathy Screening
Implementation Programme Steering Group, the King's Fund Management
Committee and the London NHS Race Equality Group, among others.
Professor Anionwu has authored, with Karl Atkin, ‘The Politics of
Sickle Cell & Thalassaemia' (OUP, 2001).
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Richard
Ashcroft is Levehulme Senior Lecturer in Medical Ethics
and Head of the Medical Ethics Unit at Imperial College London.
Dr Ashcroft holds a PhD in Philosophy of Science from Cambridge
University, in which he examined the ethical theory of scientists'
behaviour. He subsequently became interested in medical ethics whilst
undertaking a post-doctoral fellowship in Health Technology at Liverpool
University. Since then, he has researched across a broad range of
topics, notably those involving issues around clinical ethics, medical
education, biotechnology and genetic research. He has secured a
significant number of research grants, investigating issues such
as epidemiological genetics, alternative approaches to bioethics
and teaching medical ethics.
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Aamra
Darr is a sociologist and qualitative researcher. She began
her research career by examining the social aspects of genetic service
delivery to British Pakistanis, in the early 1980s. She has subsequently
conducted various research projects on health issues related to
minority ethnic groups in the United Kingdom. Her primary research
interests are the psycho-social aspects of genetic conditions, plus
genetic service delivery within multi-ethnic populations and its
global implications. She is now researching the dynamics of transmitting
genetic information in families of different ethnic origins.
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Simon
Dyson is a sociologist working on social aspects of sickle
cell and thalassaemia in the Health Studies Department at De Montfort
University Leicester. He is also director of the Unit
for the Social Study of Thalassaemia and Sickle Cell . He is
author of two books Mental Handicap (Croom Helm, 1987) and (with
Lorraine Culley) Ethnicity and Nursing Practice (Palgrave, 2001).
He is currently completing the EQUANS (Ethnicity and antenatal screening
for sickle cell/thalassaemia) for the NHS Sickle Cell/Thalassaemia
Screening Committee).
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Carole
McKeown is a consultant clinical geneticist working in
Birmingham. Dr McKeown trained in Oxford and London, and has worked
in Tower Hamlets, Hackney and Manchester prior to moving to the
midlands in 1987. Interest in genetics and ethnic minorities was
initiated in Birmingham by the late Professor Sarah Bundey, with
Dr McKeown now acting as the lead consultant in this area (in addition
to being lead clinician for the Clinical Genetics department). Dr
McKeown's personal clinical practice is located in mainly an inner
city area with a large Pakistani community. She has also worked
with the Birmingham Haemoglobinopathy counsellors and has a separate
clinical interest in cancer genetics. Dr McKeown's research interests
cover a number of dysmorphic and single gene disorders.
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Bernadette
Modell started her academic life in 1952 as a biologist
interested in genetics, embryology and anthropology. She had the
great good fortune to study for her PhD in Cambridge when the science
of molecular biology was in its earliest exciting stages. She went
on to study medicine, in order to explore the role of genetics in
human health. Her present interest in public health aspects of medical
genetics is based on a lifetime's work on haemoglobin disorders,
and work with the World Health Organisation on developed the science
of ‘community genetics.' Her present focus is on genetics in primary
care .
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Nadeem
Qureshi is a General Practitioner in North Nottingham and
Clinical lecturer in General Practice at the University of Nottingham
Medical School. He also directs the ‘Clinical Genetics in Primary
Care' programme for the NHS R&D funded Nottingham Primary Care
Research Partnership. His previous research includes identifying
genetic morbidity in General Practice; evaluating a Primary Care
based genetic service for consanguineous couples and eliciting patients
and General Practitioners' attitudes to haemoglobinopathy screening.
As a GP, Nadeem has eleven years experience of providing General
Practice based preconception haemoglobinopathy screening. He is
a graduate of University College London Medical School and completed
his General Practice vocational training in Airedale, West Yorkshire
and Kingston, Surrey.
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