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Workshop: Genetics, Ethnicity and Clinical Medicine

Speaker Biographies

Elizabeth Anionwu

Richard Ashcroft

Aamra Darr

Simon Dyson

Carole McKeown

Bernadette Modell

Nadeem Qureshi

Elizabeth Anionwu CBE is Head of the Mary Seacole Centre for Nursing Practice at Thames Valley University. Professor Anionwu is a nurse, health visitor tutor and has a PhD in Health Promotion. Prior to establishing the Mary Seacole Centre, she was a senior lecturer in Community Genetic Counselling at the Institute of Child Health in London. She is a member of the Human Genetics Commission, the Antenatal Screening Subgroup of the National Screening Committee of the Department of Health, the NHS Haemoglobinopathy Screening Implementation Programme Steering Group, the King's Fund Management Committee and the London NHS Race Equality Group, among others. Professor Anionwu has authored, with Karl Atkin, ‘The Politics of Sickle Cell & Thalassaemia' (OUP, 2001).

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Richard Ashcroft is Levehulme Senior Lecturer in Medical Ethics and Head of the Medical Ethics Unit at Imperial College London. Dr Ashcroft holds a PhD in Philosophy of Science from Cambridge University, in which he examined the ethical theory of scientists' behaviour. He subsequently became interested in medical ethics whilst undertaking a post-doctoral fellowship in Health Technology at Liverpool University. Since then, he has researched across a broad range of topics, notably those involving issues around clinical ethics, medical education, biotechnology and genetic research. He has secured a significant number of research grants, investigating issues such as epidemiological genetics, alternative approaches to bioethics and teaching medical ethics.

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Aamra Darr is a sociologist and qualitative researcher. She began her research career by examining the social aspects of genetic service delivery to British Pakistanis, in the early 1980s. She has subsequently conducted various research projects on health issues related to minority ethnic groups in the United Kingdom. Her primary research interests are the psycho-social aspects of genetic conditions, plus genetic service delivery within multi-ethnic populations and its global implications. She is now researching the dynamics of transmitting genetic information in families of different ethnic origins.

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Simon Dyson is a sociologist working on social aspects of sickle cell and thalassaemia in the Health Studies Department at De Montfort University Leicester. He is also director of the Unit for the Social Study of Thalassaemia and Sickle Cell . He is author of two books Mental Handicap (Croom Helm, 1987) and (with Lorraine Culley) Ethnicity and Nursing Practice (Palgrave, 2001). He is currently completing the EQUANS (Ethnicity and antenatal screening for sickle cell/thalassaemia) for the NHS Sickle Cell/Thalassaemia Screening Committee).

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Carole McKeown is a consultant clinical geneticist working in Birmingham. Dr McKeown trained in Oxford and London, and has worked in Tower Hamlets, Hackney and Manchester prior to moving to the midlands in 1987. Interest in genetics and ethnic minorities was initiated in Birmingham by the late Professor Sarah Bundey, with Dr McKeown now acting as the lead consultant in this area (in addition to being lead clinician for the Clinical Genetics department). Dr McKeown's personal clinical practice is located in mainly an inner city area with a large Pakistani community. She has also worked with the Birmingham Haemoglobinopathy counsellors and has a separate clinical interest in cancer genetics. Dr McKeown's research interests cover a number of dysmorphic and single gene disorders.

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Bernadette Modell started her academic life in 1952 as a biologist interested in genetics, embryology and anthropology. She had the great good fortune to study for her PhD in Cambridge when the science of molecular biology was in its earliest exciting stages. She went on to study medicine, in order to explore the role of genetics in human health. Her present interest in public health aspects of medical genetics is based on a lifetime's work on haemoglobin disorders, and work with the World Health Organisation on developed the science of ‘community genetics.' Her present focus is on genetics in primary care .

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Nadeem Qureshi is a General Practitioner in North Nottingham and Clinical lecturer in General Practice at the University of Nottingham Medical School. He also directs the ‘Clinical Genetics in Primary Care' programme for the NHS R&D funded Nottingham Primary Care Research Partnership. His previous research includes identifying genetic morbidity in General Practice; evaluating a Primary Care based genetic service for consanguineous couples and eliciting patients and General Practitioners' attitudes to haemoglobinopathy screening. As a GP, Nadeem has eleven years experience of providing General Practice based preconception haemoglobinopathy screening. He is a graduate of University College London Medical School and completed his General Practice vocational training in Airedale, West Yorkshire and Kingston, Surrey.

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